Thursday, July 17, 2008
Where does it go?
Time that is... This summer has just flown by. It seems there is never enough time in the day to get everything done. I can either be a fun mom and do fun stuff and go fun places and help the kids get 4h projects ready for the fair etc etc.. which is all great fun... but then at the end of the day my house is trashed. Or I can be the cleaning mommy and the house gets picked up and dishes done, and laundry gets folded... etc. etc.. but then I'm the no we cant go to the zoo, no we arent going to scrapbook mom... which is no fun. But at least the house is clean...
An eclectic mix of the two you ask??? Thats what I'm striving for... but each type of mommy takes so much dang time....
Also note, there is no blogging mommy in there,,, so needless to say my poor little blog has suffered.
So whats new on the mommys busy front besides no time???
Surgery for Faith is still scheduled for the 8th. We are all kind of holding our breath that she doesnt get sick between now and then.
Logans thyroid tests are scheduled for the 24th and 25th. I cant wait to get this done and find out what we need to do to get him back on track. Not only for his sake, but for all of ours. He is so irritable and high strung that you feel like you are walking on egg shells around him. Not to mention he is still feeling so bad and is still losing weight. I want my little boy back.
My wonderful Father in law came to visit from Florida last Thursday, and left yesterday. It was so great to see him, we miss him soooo much and hated to see him go.
My just as wonderful mother in law is coming to visit from California next Thursday and is staying til the first!!! Yay!!! I have missed her so much, I may just not let her go home!!
In between then we are going for a little family vacation to Albuquerque. We are leaving Saturday and will be back Wednesday. The kids (and I) love the zoo, the aquarium, the explora, I cant wait... And Marc found this cool "living, interactive" history place to go to that sounds sooo cool!!! I'm so excited.
What I'm not excited about is the 23 (yes I did say TWENTY THREE) fair entries that have to be completed (for Beck and Haleigh,,, EACH) as the Fair starts August 1st. and Logan has 10 or 12 or something that needs to be completed...
And I need to get the house ready for my Mom in law.. (not that she wouldnt love me just as much if it was a mess, but you know...)
And I need to get laundry done and all of us packed for Albuquerque...
What am I doing still here blogging?????
Wish me luck... Happy Summer!!
Saturday, June 28, 2008
Quick update...
Well if you are reading this you have probably surmised that Faith did not have surgery yesterday. We had the preop appt last monday which went well. However, after much decision making on doctors parts, Faith will be having a lengthier surgery on July 11th. The reason for the delay is because there wasnt enough O.R. time to schedule for the initial date. The plastic surgeon feels hopeful that in addition to helping her speech issues, that he could possibly help her swallow. However, to do this, an additional hour and a half of surgery is required. I cant really explain it much right now, (the surgeon spent forever drawing diagrams and explaining) but it involves stretching and reattaching muscles, extra incisions, and such. Needless to say we are all very nervous about surgery, especially the anesthesia, and potential for swelling of her airway.
Also, Logan has been having some issues with his stomach and swallowing. I have become very concerned about him, and he has lost 4 lbs. in the last 3 months. His activity level isnt the same, and he just looks "off". I took him to the doctor who ran some tests and he will be having a swallow study and a thyroid scan soon (hopefully before Faiths surgery) The initial lab tests show that he may have something wrong with his thyroid, and actually may have Graves disease. I dread the thought of having another child with significant (all though not as bad as Faiths) medical problems. However, I just want them to find whats wrong so we can treat it and I can have my little boy back.
Anyway, theres the update, please pray for Faith for her surgery, and for them to find out whats wrong with Logan.
Saturday, June 21, 2008
A quotable quote from my son...
Logan was asking me to tie his "hunting boots" this morning, since I was actively putting laundry in the washing machine I told him to hang on a minute.
His little head peeked around the corner into the laundry room and he said...
Uhhh mom, I'm a little boy, and little boys arent built to wait minutes. They are built to wait seconds.
I dont believe a more truthful statement has ever been spoken.
Saturday, June 07, 2008
The one where I have a temper tantrum...
I had a post almost all ready to go about my eldest two daughters, about how proud I was of them, Beck for graduating junior high and getting lots of awards, and Haleigh for completing her sewing class, and then competing and winning 3rd place on her two projects. But then we had Faiths plastic surgeon appt. and cleft palate clinic. I am still very very proud, and will post that post, but first I am going to have a temper tantrum.
Faith had her hearing tested (part of the clinic). It showed she has mild to moderate hearing loss in both ears. That sucked. What sucked even more is that her plastic surgeon feels strongly that she needs to have her cleft palate repair surgery done. Soon. As in by the end of this month soon. We have her pre-op appt on the 16th and he is shooting to have her surgery the last Friday of this month. Now, I knew this surgery was coming at some point. I just didnt think it would be this summer. not to mention this month.
Ready for the temper tantrum part??? I dont want to go through this, I dont want her to have to go through this, we just passed the one year mark on her last surgery. Her, and ours, last summer sucked. This was supposed to be the summer of fun. We were going to do fun things, crafts, swim, ride the city bus around town (faiths idea, she loves busses) go to the zoo, go to the lake.. and the list goes on. She wasnt going to have to worry about being poked prodded, taken to surgery, or stay in a hospital 3 hours away from her siblings. We.were.going.to.have.FUN!!! Its not fair to my other kids, they put up with sooo much last summer, their summer sucked too. I was making up for it this summer. And now this. I cant deal with this right now. I just cant watch her suffer again, I am so scared of her having another surgery, scared for her, scared of losing her, just scared in general. And Angry. Its not fair. No 3 year old should have to go through two major surgerys two summers in a row. No family should have to endure this two summers in a row. Yes, here it comes, the WHY US? WHY HER? questions. I dont understand. We were saving up 300 for a new swimming pool for outside. All of the kids were working hard to save up money, and when I told them about the surgery all of their faces fell, they knew. Haleigh said what they all were thinking, "so I guess that means no pool for us this summer huh? Thats ok, as long as they fix faith up, its worth it" No 9 year old should have to say that.
I still dont know how we are going to pay the 300 copay for surgery, the copays for everything else, travel to and from Albuquerque twice in the next few weeks, and not to mention having to pay for somewhere to stay and food to eat while we are there. Also have to find someone to stay with the kids, feed the animals, sigh... I am overwhelmed, and broke.
Ok, temper tantrum over. for.now.
Anyway, all that aside, all of the reasons he (the surgeon) wants to move forward with surgery so quickly makes sense. She is healthy right now, she is finally talking enough that they know what they need to fix. And her speech isnt going to improve much if any more until she gets the structural fix she needs. Her frustration at not being able to say things right will however continue to increase. That breaks my heart to watch her try and say things and not be able to understand what she is saying. Also, all of the "compensatory errors" that she is making right now will continue, and become habit, thus making learning how to talk after her surgical fix even more difficult. She is also out of school and I am off of work for the summer, this makes scheduling better.
She will be having a Furlow Z-plasty. This is where they cut open the roof of her mouth and reattach the muscles where they should be, and also some other stuff that I dont really understand right now, but hopefully will after the surgeon talks to us more at the pre-op appt. The surgery will be about 2 hours, and the hospital stay a few days. Unless any dreaded complications arise. This is a yucky surgery. If she suffers any swelling in her mouth postop her airway will swell shut. Needless to say this is very life-threatening and would require days on a ventilator if she survives the event. After discharge, post op recovery is generally about 2-3 weeks. She wont be able to eat much at all.
So the reasonable part of me, the rational part, understands the decision for surgery so soon.
But the irrational, angry part of me.. No.way.
Tuesday, June 03, 2008
One Year
At this time last year I was getting ready for what I thought was going to be one of the scariest days of my life. It was the day before Faith had surgery.
Come to find out it wasnt going to be one of the scariest days of my life, but the scariest three weeks of my life.
Surgery went great, it was afterwards that sucked. Allergic reactions, Paralytic ileus, Gastroparesis, and so much more.
But yet that surgery saved her life. Even with all of the complications that came from it, some of which we still deal with today, bottom line is..
The.Surgery.Saved.Her.Life.
And for that I am so very thankful.
Besides saving her life, the surgery also changed many other things. It brought us closer together as a family, it made me take a close look at the things I used to think were important, it brought me closer to my friends, it made me appreciate every day, it brought me closer to God.
1 Year. On some days it seems like forever ago, on other days, it seems like yesterday. So many things have happened, so many new problems found. But we are here, she is here.
And for that I am so very thankful
Saturday, May 17, 2008
The sign on my office door...
Need I say more!!!!
YAHOO!!!
Bring on Summer!!!
